← Return to Doctor is concerned about Kidney GFR numbers: Should I be?

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@cl2020

@gangcarotid1 - thanks for the info. It just seems like after a surgery where you are losing part or a whole kidney the body would have to settle and figure things out before numbers go back to a “normal” range again. No one really explains it the same. The gp says it should be this way, the urologist says this way. It’s sort of the wild Wild West. And furthermore what the normal is really doesn’t take into account other factors, which is why my endo doesn’t care for the “estimated” gfr. I’m a 54yr old female with a more than average amount of muscle and not overweight but I have lupus and hypothyroidism- I’m not sure what normal I’m supposed to be. All I can do is eat clean and exercise, continue to take care of myself. What the body will do and this kidney I have left, I have no clue but I’ll care for it the best I can. I did get very depressed when my numbers came back wonky and felt super deflated after going thru such a surgery. Trying to reorganize and get back in track mentally. The stress will only make things worse.
I appreciate hearing the stories as it’s helping me realize there is cookie cutter way this is supposed to work.
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Replies to "@gangcarotid1 - thanks for the info. It just seems like after a surgery where you are..."

An additional frustration I had was, my PCP was assuming things about my surgery. My surgeon was very tactful the first time around when my PCP said my hemoglobin was low, as well as my sodium... he simply replied it was the white blood cell count and checking for infection he was concerned about; after ya have a 7 hr surgery, you do have to regenerate some hemoglobin! And my sodium was only 3 pts below a low normal, and moving in the right direction. Was glad the surgeon put it succinctly to the PCP. When the PCP started assuming I'd had a continuous irrigation during surgery, my surgeon just flat told me to extract myself from my primary care provider for local post-surgical oversight, and find a nephrologist which I did. Just feels like I have to be at least as knowledgeable about my kidney issues and my NET on my carotid artery as an GP would be... have to 2nd-question anything meds-related, etc.
We have to be a strong advocate for ourselves in today's medical environment