Hello @panorman3 and welcome to the NETs support group. I'm glad that you found this forum. I joined Connect when I was facing my third surgery for a NET and I found the experience of others to be very helpful in facing the next surgery. As my first surgery was in 2003, I am now a 21-year survivor of NETs.

I look forward to hearing from you again as this sounds like a new diagnosis for you. Is my understanding correct? You say in your post that your NET is too difficult to remove. Could you provide a bit more information on this? Is it the location or the type of tumor?