← Return to BMT at Mayo AZ — What should we know to prepare for transplant?

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@loribmt

Hi @rv10! May I offer an official welcome to Connect. I see you signed on back in August but this is your first time posting. And what a fantastic and helpful reply for @redheadelephant as she helps her mom get ready for a BMT in Phoenix as well.

Thank you so much for sharing this information for the protocol at Mayo-Phoenix. It’s very much the same as I received 5 years ago in Rochester. It’s not easy planning for a long stay away from home.
There are a number of conversations in the forum regarding long term stay for BMT patients and caregivers. Here is a link to one of the replies and the threads that follow. https://connect.mayoclinic.org/comment/703859/

They are all found in this discussion I started a few years ago, which would be a great place for you to join in as you’re about to receive your BMT. You might find some of the replies helpful as you make your lists and gather your supplies.

~My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
I know other’s will be surprised at not brining along a toothbrush, toothpaste or floss. There will be special foam ‘brushes’ required for daily oral hygiene. The preconditioning chemo and the transplant itself can bring temporary changes to the oral tissue. Brushes and floss can injure the sensitive tissue and be a portal for bacteria. So until you get the ‘all-clear’ those items are discouraged.

I’m curious about bringing a bed topper. Will you be an in-patient?
If you don’t mind sharing, what illness brought you to needing a bone marrow transplant?

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Replies to "Hi @rv10! May I offer an official welcome to Connect. I see you signed on back..."

I am local to the Mayo, so I will only be in the hospital for the usual thirty day or so stint. The mattress topper was recommended by the pre-admission transplant nurse to make the bed a little more comfortable. They just asked that it be brand new to minimize bring in anything nasty that could jeopardize your health.

I have CMML-1 and Smoldering Myeloma after monitoring MGUS for about ten years.