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@terarenee
Merry Christmas to you and your family/son.🎄
Has he had a MRI of his head/brain as well as his spine? Has he had extensive bloodwork done to check for anything off or autoantibodies? His perceptions of pain have definitely increased and it could be tied to sports, virus, autoimmune. Does he have pain beyond his spine like in his joints/arms/legs?
What happened right before his pain started? Was he playing a sport or doing something where he hurt himself? Has he ever had a concussion/hit his head? Was he sick with a virus?
I have spine and nerve issues so can relate with the pain. Did your son’s neurologist do any testing like EMG/nerve conduction studies? What does his pediatrician recommend? Have you considered taking him to a rheumatologist to rule out autoimmune issues? Pain management will treat pain but not get to the root cause of the pain. You really can’t treat pain properly without a diagnosis of the source of pain.
You may want to take videos of your son during pain episodes to show the doctors rather than only try to explain it. I have a 15 year old son who has had a couple concussions and has some health issues so can imagine how worried you must be.
I pray for you to get God’s guidance on where to take your son and finding the right doctors to diagnose/treat him. 🙏
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He did have a virus that started as a sore throat. A week later it became stabbing pain in the lower neck that travels up and around the spine. He legs and ankles have hurt and his face and body have been swollen. As far as injuries he did have a bad fall that knocked his tooth out and hurt his neck and body. That was 4months ago.
The neurologist did the physical screening and the mri of the brain. That’s where he stopped. Upon my request we tested for a few proteins in his blood that usually are markers for some autoimmune diseases.
But really the neurologist here is done testing we only had 1 visit and now he wants to treat for stress. He is just not listening that a healthy happy child is in debilitating pain. I was also thinking about a rheumatologist. They take months to get into here. I have noticed that pain medication doesn’t affect this pain. So I stopped giving it to him. I am also thinking of seeing another local neurologist. No one in my family has dealt with chronic pain so it’s been difficult on all of us to see him suffer and just be completely inactive due to pain.