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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: Jan 2 10:24am | Replies (18)
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@catalinaharley752

I’ve been getting two injections of 40 milligrams every 28 days for the last 3 years. Dr says probably the rest of my life… not fun but it does help control the tremors and flushing. The diarrhea not so much.

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Replies to "I’ve been getting two injections of 40 milligrams every 28 days for the last 3 years...."
pavlina60 | @pavlina60 | Dec 25, 2024

I get 120mg every 4 weeks. It does control all the symptoms! My hair started falling out, so I take Biotin and it seems to help.

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plbyates | @plbyates | Dec 26, 2024

My husband gets the sandostatin shot every 28 days and is also taking xermelo three times a day for the diarrhea. Xermelo has definitely helped for the diarrhea.

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