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@marijo4

Good morning and a Happy Christmas to all. I’ve only just seen this place. After a big spinal operation which didn’t go well, my pelvic organs all failed and I had a major prolapse resulting in a big repair job. After this I experienced chronic and horrible bowel problems. I tried spinal stimulation and this didn’t work. I was offered the ace procedure, which involved washing out my bowel twice a day with some kind of a contraption hung from a hook in the bathroom. After such a long time of suffering with incontinence and constipation alternatively I did not find this solution appealing. At this point I was also intermittently catheterising. After my prolapse which was both pelvic and rectal, part of my colon was removed, but failed to return to normal function. Eventually I was offered an ileostomy and it was explained to me that this was irreversible. Frankly, the idea of just being in control again was very appealing, so I went ahead with this operation. This is called Total pan proctocolectomy. I have never looked back and it has not given me any grief. Subsequently, I also had to have complete removal of everything below, ie; rectum and anus, so there was absolutely no chance of a reversal. I have experienced the odd accident but I soon learnt how to deal with this and how to avoid it. Diet is very important, and I have to be very careful about not eating too late, too much, or too much fibre. I soon learned the foods I was able to eat easily and the ones I should avoid. For instance, an overindulgence of nuts landed me in the ER, for a unpleasant overnight stay with a tube stuck down my nose. I am now very careful these days, but I can honestly say I have never looked back and I am now able to do everything that I did before including swimming regularly. Also, these days there is no shyness attached to having a condition such as mine, and the subsequent solution, which gave me freedom to live my life without restrictions. All the best to anybody contemplating such a procedure, and think about it positively.

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Replies to "Good morning and a Happy Christmas to all. I’ve only just seen this place. After a..."

La felicito por su fuerza en todo lo que le pasó, felicidades en estas fiestas navideñas.

@marijo4, I'm glad you found Mayo Clinic Connect and shared your story. Having a total pan-proctocolectomy removing the entire colon, rectum and anus can be very scary. It is helpful and hopeful for other members who may be facing this operation to hear that, for you, the outcome was positive and gave you freedome to live your life without restrictions.

What is one thing you wished you had known that you'd like to share with others?