← Return to RSD/CRPS

Discussion
Anonymous avatar

RSD/CRPS

Brain & Nervous System | Last Active: 2 days ago | Replies (155)

Comment receiving replies
Profile picture for erinaphilly @erinaphilly

I feel so bad that so many people are feeling this pain and not being diagnosed I thank God I was diagnosed immediately . But even with early diagnosis nothing is helping I did Gabapentin a did the nerve block and just finished the travel for the electrodes in the spine . I just don’t understand why the burning is now traveling it was the left arm then was traveling up my neck now it is going down my left side and all through my left leg I feel like I am an FIRE . As the burning begins my skin literally starts looking like I am being burned on the inside it starts changing color and looks like blisters are forming . I have insomnia now to top it off and I literally want to jump out of my skin .

Jump to this post


Replies to "I feel so bad that so many people are feeling this pain and not being diagnosed..."

@erinaphilly Sad to say this is why CRPS is called the suicide disease. If you don't catch it early (like in the first 3 months) managing the pain is almost impossible. I have tried every treatment that has been know to help without any relief. Good luck to you! Keep trying!