← Return to Hyperparathyroidism caused osteoporosis--now what treatment?

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@SusanEllen66

@sebutler
I had hyperparathyroidism In 2006, and 2007.
My blood calcium was up to 11.1 and I was feeling horrible. I had the tumor removed in 2008. I felt better in 2 days!

My bones paid the price of course. Back then all I could get was a nasal spray, Calcitonin. Doctor wanted me to try Prolia, but my insurance wouldn’t cover it.
Eventually my bones improved for a while and I was classified as having osteopenia.
Now, after battling several autoimmune diseases, I have osteoporosis. I get Prolia shots twice a year with no problems at all.

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Replies to "@sebutler I had hyperparathyroidism In 2006, and 2007. My blood calcium was up to 11.1 and..."

I need some input with this from anyone who can chime in. I was diagnosed with hypercalcemia and severe osteoporosis. The osteoporosis was a diagnosis in 2022/23, and then Hypercalcemia in 2023/24. My labs kept showing a high rate of calcium in the blood, and after multiple labs, I begged my doctor to do more extensive scans, testing. He ordered scans for parathyroid, thyroid, kidney, stomach, heart. All the xrays or scans came back what he called normal, however, my labs tell a different story. Everything in a comprehensive lab testing is off, way off and has been for over, 2years. How if everything is normal on a scan, but the labs aren't, where do I go from here? I have a doctor that has to be pushed in the right direction, or he will do nothing. I have to advocate for my health because he will not take the time to research and do the right things. He is an Internist. Here where I live, there are a shortage of Rheumatologists and so the waiting list is over a year, its like almost 2 years. So, from the Reclast infusion, I had a severe reaction to biophosphinates. Unfortunately, that will not be an option for me because of that, I am still reeling from side effects. How do I find out if this is a parathyroid issue? What are the symptoms, etc? Or something else/ I am frustrated because, I am not getting answers, and my doctor is not proactive, and my health is severely declining. I joined these forums to find other options and knowledge that I can utilize to make informed decisions. Is there correlations between osteoporosis, hypercalcemia, that are really caused by other issues, or are they one in the same?