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@jehjeh

I guess it's not uncommon for patients to be able to mask their symptoms long enough that others can't see how bad things are. My hubby keeps telling doctor's that he's doing much better, whether they ask about his chronic pain, his sleep, etc... actually, everything is much worse but I can't say anything because he gets really angry with me for days after.

It's helpful for me to vent here but I wish there was more help available.

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Replies to "I guess it's not uncommon for patients to be able to mask their symptoms long enough..."

When things are not normal I write down the incidents in a log, then summarize before we go to the Doc. If your doctor has any background at all with this, they'll know that symptoms can be masked and can rely on you for first hand information. You can hand this summary to a nurse or admin person before the visit, so they have a heads up, or mail to the doctor with explanation before the next visit; just a thought (so spouse is not mad at you).

I have found out that neurologists like to always be in control of the visit. But I will try my best and ask questions and I feel that the Dr. tends to not really want to hear what is actually happening with my spouse. My feelings are not in the conversation, which is ok with me. I just feel if your Dr. is not informed about major things..how can they be of any help?? How can a person who is not truly in the moment be able to answer or ask questions. He will always say "I am fine". It usually is not the case at all. He just wants to leave. It should be a family and of course always the patient to have or be part of an informed visit. Healthcare is not what it used to be! Empathy and compassion seem to be absent. Sad and I know why. Money is only made if they see more patient's. The only physician that shows empathy is our Internist. Kind, asks how you are and what is bothering you, etc.