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What were the first signs you noticed?

Caregivers: Dementia | Last Active: 4 hours ago | Replies (26)

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@jehjeh

I guess it's not uncommon for patients to be able to mask their symptoms long enough that others can't see how bad things are. My hubby keeps telling doctor's that he's doing much better, whether they ask about his chronic pain, his sleep, etc... actually, everything is much worse but I can't say anything because he gets really angry with me for days after.

It's helpful for me to vent here but I wish there was more help available.

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Replies to "I guess it's not uncommon for patients to be able to mask their symptoms long enough..."

When things are not normal I write down the incidents in a log, then summarize before we go to the Doc. If your doctor has any background at all with this, they'll know that symptoms can be masked and can rely on you for first hand information. You can hand this summary to a nurse or admin person before the visit, so they have a heads up, or mail to the doctor with explanation before the next visit; just a thought (so spouse is not mad at you).