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What does my dentist need to know about my NETs?
Neuroendocrine Tumors (NETs) | Last Active: Jan 9 1:11pm | Replies (15)Comment receiving replies
At 50 I had a right hemecolectomy. 2 years ago was told it spread to my liver (i have several). Tested every 6 mths. Have been told its grown minimally. Too small to start the shot. I am now 57. Does any one else have diarrhea on a daily bases no matter what u eat? How about hot flashes? Can't tell if it's post menopausal or from NET. Thank you
Replies to "At 50 I had a right hemecolectomy. 2 years ago was told it spread to my..."
They are flushing versus hot flashes. Flushing just turns you red, but you do not sweat. I get it after using the bathroom, funny as l flush the toilet l always start FLUSHING from my scalp, face, ears sometimes my upper torso. Mind brings in migraines, miserable those darn NETS in my lungs. I get bad G.I. if l eat the wrong good for my NETs/ histamine problem. Keep a journal when the flushing starts i.e. what you were doing, eating. Strange, my come on at night. I am 75, no hormones LEFT, l know they are carcinoid syndrome.
They are flushing versus hot flashes. Flushing just turns you red, but you do not sweat. I get it after using the bathroom, funny as l flush the toilet l always start FLUSHING from my scalp, face, ears sometimes my upper torso. Mind brings in migraines, miserable those darn NETS in my lungs. I get bad G.I. if l eat the wrong Good for my NETs/ serotonin produced from tumor sets my GI. problem. Keep a journal when the flushing starts i.e. what you were doing, eating. Strange, my come on at night. I am 75, no hormones LEFT, l know they are carcinoid syndrome. I have been known sticking my face in the freezer for relief. I would love a popsicle, put eating any sugars sets me up with extra bathroom visits. Good luck!!
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They call the disease Zebras because no 2 are the same
I never had a hot flash through menopause
Now if I over do I suffer with hot flashes
I do get diarrhea but not on a daily basis and doesn’t matter what I eat it just attacks me
I am 70 at 65 I had a liver resection and for about 2 years I was good
Then I got scanned and found that it metastasized to my liver from an unknown origin as soon as that happened I started Lanreotide than Ocreotide as well as a lot of in between treatments
I believe the only way to stay ahead of it is to be smarter research and options from a bunch of specialists
Good luck