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What does my dentist need to know about my NETs?

Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (10)
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@amygirl

At 50 I had a right hemecolectomy. 2 years ago was told it spread to my liver (i have several). Tested every 6 mths. Have been told its grown minimally. Too small to start the shot. I am now 57. Does any one else have diarrhea on a daily bases no matter what u eat? How about hot flashes? Can't tell if it's post menopausal or from NET. Thank you

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Replies to "At 50 I had a right hemecolectomy. 2 years ago was told it spread to my..."
sophiarose | @sophiarose | 1 day ago

They call the disease Zebras because no 2 are the same
I never had a hot flash through menopause
Now if I over do I suffer with hot flashes
I do get diarrhea but not on a daily basis and doesn’t matter what I eat it just attacks me
I am 70 at 65 I had a liver resection and for about 2 years I was good
Then I got scanned and found that it metastasized to my liver from an unknown origin as soon as that happened I started Lanreotide than Ocreotide as well as a lot of in between treatments
I believe the only way to stay ahead of it is to be smarter research and options from a bunch of specialists
Good luck

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