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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (126)
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@ronjake

I take Lanreotide and as far as I know no side effects after almost 2 yrs on it. I did stop taking it one month because it did not appear to help me. My tumors kept growing and spreading so they switched me to CapTem. However a couple weeks after missing that one shot I started having heart rate issues. After a slew of heart tests it was determined likely caused by my cancer. Started taking it again and sure enough back to normal. So even though it did not slow the growth, it does manage my Carcinoid Syndrome caused by the tumor load.

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bluebird1953 | @bluebird1953 | 3 days ago

My husband has been on the shots every 2 weeks. They say that it’s working as far as tumor growth is concerned, but he also takes Everolimus every day. I hate giving him the shots because they haven’t slowed the problems with his heart valves from the vast amount of tumors he has. He had one valve replaced and another one is leaking that should have been replaced with the first surgery. No amount of Lasix is helping the gross amount of swelling. Has anyone else had these problems with NETs?

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