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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: 21 hours ago | Replies (414)Comment receiving replies
I had the lumpectomy for multifoci lbs on left breast.
Stage 1 grade low recurrence score.
I was told I could skip radiation by ancoligist if I went on hormone blockers. With all the other issue I have pmr osteoporosis, they recommended tamafoxin, which isn’t the best for LBC but less bone damage with it. I really didn’t want to take hormone blockers since I have been on prednisone for over 2 yrs.
I decided to talk to radiation doctor, and he told me since a lot of women can’t tolerate the hormone blockers and since I have multifoci in 1 quadrant, I should get radiation.
I did 16 treatments, with hold the breath sessions and got extremely sore after last treatment. It only protects the breast that was affected,
Im 75, and they tell older women a lot they don’t need radiation, with stage one, I think they say that because they think something else will get you before the cancer.
Not sure if I made the right choice. It’s a hard decision to make when they leave it up to you.
🙏🙏
Replies to "I had the lumpectomy for multifoci lbs on left breast. Stage 1 grade low recurrence score...."
@sharon44r
Like you I had LBC in one breast. For me, the right one and I did the breathing thing. At first my surgeon suggested one week of radiation but the RO decided on 3 wks because lobular is "diffuse." I think that means it can show up anywhere if it comes back. (my interpretation). The medical oncologist said I might not need those meds but I didn't want to take chances so I start at end of week. I think you are right in your assumption that at my age (78) they think you might die of something else first. (My mother was almost 95 when she passed on.) To date, I've been pretty healthy. The radiation was uncomfortable. My facility wasn't up on Mepitel film so I didn't try it. Right now I am one week out from radiation and very itchy in my chest area. My RO called in some triamcimolone yesterday so I hope that helps. I'm a bit frustrated by all the women who tell me their mom/sister/aunt had breast cancer and lumpectomy and are still alive and well. No problem. They don't know if it was ductal. My bet is that it was. I'm trying to get my info/survival rates re: LBC so let's stay in touch!
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Glad you did the radiation, do any and all that will help or stop the cancer from recurring or metastasizing.