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@mvc

I really appreciate the feedback. It’s all just really complicated. I’ll get my first PSA test (post Radiation) soon so hopefully that will tell me more. I always thought that after radiation I could get another “test” and determine if it was all gone then go about my merry way .. just realizing it’s not that simple.

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Replies to "I really appreciate the feedback. It’s all just really complicated. I’ll get my first PSA test..."

Great, so now you have seen what the very experienced members of the forum have advised and you’ve stated that you had no surgery.
You had a Gleason 5+4 which is considered high risk (5+5 being the highest) and had radiation for it. Did you have a Decipher Test, which gives you an idea of the cancer’s ability to spread? Did you have a PSMA PET scan to show any spread outside the prostate?
These are very important things to know before you can determine what treatment you require. Your RO saying you need yo be on ADT for 18 months sounds reasonable - you have a very high grade cancer and it needs more ADT to weaken it. But you also may require additional meds - as others have had - to really hit this thing hard.
You might want to also consult with a medical oncologist in order to see if there are additional steps you should be taking NOW.
If you have been having trouble getting answers or finding a team to coordinate the best treatment for YOUR cancer, I will go back to what I said a few posts ago. Get away from your urologist - useless at this point. Locate a major cancer facility near you, ask for a consult and have copies of your records sent there. They may perform additional tests and scans which you haven’t had.
I will sum up by saying that prostate cancer is NOT simple; Gleason 5+4 is VERY serious; and you are NEVER DONE with this disease.
But remember that others in your situation have lived for decades with this and you can too!!