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Any one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: Aug 27 7:50pm | Replies (215)Comment receiving replies
Hi! I have been receiving Octreotide injections once a month for about a year now. For me, the first few months caused some fatigue but it’s hard to say if it is from the shots or the cancer itself. I am stage 4 and my cancer has metastasized to my liver. I recently finished 4 rounds of Lutathera radiation in conjunction with the shots. I haven’t really noticed any ill effects of the shots personally and I will be receiving them every month for the rest of my life. I hope this helps:) Prayers and well wishes for you…
Replies to "Hi! I have been receiving Octreotide injections once a month for about a year now. For..."
Sherry, your experience sounds exactly like mine. I have been getting injections of octreotide every 4 weeks, and also went to memorial Sloan Kettering for 4 infusions of lutathera. Except for minor fatigue, and would never know that I have neuroendocrine cancer in my pancreas that has spread to o my liver.
How are you doing?
i appreciate your sharing. Were your tumors growing and that is why they gave you 4 rounds of Lutathera? How did the tumors respond to the Lutathera treatment? I am grade 2, metastatic to the liver. No known origin but assume it was the GI track. I have had 8 Octreotide shots and the tumors continue to grow.
Did the Radiotherapy reduce the liver Mets?
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My husband was diagnosed with a NET a year ago. His doctor has only prescribed sandostatin (hope I am spelling that correctly). Never even really mentioned radiation. I know it does depend on the individual’s specific circumstances, but I am just wondering if maybe we should inquire about it since that seems to be pretty common in others who have the same diagnosis. Can you share any additional information that might help us?