I am sorry to read about your insurance company denial. That is such a sad situation in the United States. I would try and find a clinical trial. My husband had CAR T treatment on November 5. Besides the absolutely superior care he had as a clinical trial patient, he tolerated the treatment really well. After the first month, he was feeling so much better, looking so much better, and doing things that he hadn’t been able to do for months prior. Now, nearly, seven weeks later, he is well back to his normal self, a feeling he hadn’t had in over a year. While my husband had three days of chemo leading up to CAR T he has not experienced any cognitive changes whatsoever. In fact with the CAR T treatment that he received at Princess Margaret Hospital in Toronto, he had no ill side effects whatsoever. Nothing. Except extreme tiredness on occasion during the first month. Our experience with a clinical trial was exceptional. We would highly recommend this route. Car T is the future of treatment and I would do everything in my power to try this method first.
Nancy Simpson