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Neuroendocrine Carcinoma with Liver Metastasis

Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (48)
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@sophiarose

I have metastatic NET
Did they tell you about Afinitor? It is a form of chemotherapy
There are many people in it with good outcomes
I took it for 9 weeks however I got one of the rare side effects and had to stop
But other than that it was tolerable
There is also PRRT which I just finished and will get scanned in February
There is a lot of treatments out there
Be strong
Keep fighting
I myself have gotten 3 didn’t options and I am researching a 4th
Best wishes

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Replies to "I have metastatic NET Did they tell you about Afinitor? It is a form of chemotherapy..."
amygirl | @amygirl | 1 day ago

No I haven't been. Only told about shot once a month once my tumors become a certain size and that shot has side effects. I will ask at next appt. Thank you

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