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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: 5 days ago | Replies (73)

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@arcollett

I was diagnosed with Stage 1b uLMS after a hysterectomy I had on Oct 29th. CT scans on Nov 15 showed I had a tumor between my bladder and bowel that wasn't present during surgery, making me stage 3. Some small nodules were also found in the lungs but too small to biopsy - too early to tell. Started chemo Nov 25th of gen/tax (gen only). On Dec 2 had the combo but severe reaction to tax - heart and lower back pounding in the rhythm of heartbeat with pain. I was told reactions happen with tax but not within 2 minutes of starting it. They had to stop for 30 min, give more steroids and Benedryl, and restart slowly. Has chemo with combo today and did fine. But I am haveing problems with my heart after the first combo - seems I have a left branch bundle block (LBBB) that comes and goes (have a follow-up with cardio in Feb). The LBBB was discovered when I went to ER thinking I was having a heart attack. Beginning to have incontinence issues with my bladder. My cancer team does not usually go back in for another surgery so soon, but will discuss more with my gyn/onc on Dec 26. I have to be off chemo for at least 3 weeks before they can do surgery. I have 3 CT scans scheduled for Jan 7th to obtain more info. I am getting treatment at the O'Neal Comprehensive Cancer Center in Birmingham, AL. I have a referral for a second opinion to a sarcoma doctor here but appt has not been established yet. I'm 69, and have a history of fibrous tissue in my uterus, been on Mimvey low does since menopause at 52, first D&C mid 50s, and was diagnosed last year with a fibroid and more fibrous tissue, had a D&C, but bleeding continued, put on progesterone as well. I'm 69 years old.

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Replies to "I was diagnosed with Stage 1b uLMS after a hysterectomy I had on Oct 29th. CT..."

@arcollett, have you heard about a specialty called cadio-oncology?

Mayo Clinic offers expertise in addressing heart problems (called cardio-oncology), potential or current issues. The Cardio-Oncology Clinic (https://www.mayoclinic.org/departments-centers/cardio-oncology-clinic/overview/ovc-20442193) evaluates people prior to cancer treatment and patients who have experienced side effects due their treatment.

Might they have a cardio-oncology specialist where you receive care? Are you now also in the care of a cardiologist?