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Metastatic colon cancer on the vaginal cuff
Finished Folfox 5fu in February when I had stage 3c right colon cancer. I was hoping it would have worked at least for afew years. A few weeks ago I started to bleed and knew it wasn’t a good sign with a hysterectomy. Praying they would find a torn cuff that needed surgery, I went to my gyn onc for an exam to be told there was a mass. It had not been there 2 months prior at my routine visit. So my prayer switched to please be the uterine cancer. It was not. So with a CT that showed enlarged lymph nodes in the pelvic region, we are in Stage 4 with cancer on the vaginal cuff and nodes. Only a 1-3% chance of getting it in that area. I know its a longshot, but anyone else deal with this? My onc is looking at my markers to see if I have any markers for other cancers in the specimen because its not acting like colon cancer and she hopes to treat it with another cancer treatment that will attack it better. Folfiri is her 2nd choice and I don’t think she feels confident in it. She didn’t say it, but with the aggressive nature of this and the folfox not working beyond this short time, I can tell its an uphill climb. Any real difference between folfiri and folfox?
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@myjiggers1: so distressed to read your post and wish I had answers. If I were you I would contact the closest CancerHospital and get my local Dr to get me immediate referral for 2nd opinion on which treatment to pursue. It sounds like time is an element that requires persistence and perhaps intervention by your doc to insurance providers and Cancer Center’s scheduling. Stay hopeful!
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2 ReactionsI was stage IV colon cancer that hard spread to vagina cuff among several other areas. I was referred to the Mayo Clinic in Rochester ,MN. I am now 3+ years in remission. I am not back to normal and I may never be; but glad to be alive and getting stronger each day and staying positive. You’ve got this. Keep fighting.
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6 Reactions@myjiggers1, I hope you saw the post from @twin71 who also has experience with colon cancer spreading to the vaginal cuff. Twin71, your 3+ years of remission gives hope!
Myjiggers, have you had further testing done to confirm if the cancer on the vaginal cuff is indeed metastatic colon cancer or a new primary cancer? How are you doing?
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3 ReactionsHi twin71!
So glad to hear you are 3+ strong! That does give me hope! May I ask what your regimen was? They are going to hit me with radiation down there to stop the bleeding. Then Folfiri I think as chemo. They found some lymph nodes in the surrounding pelvic region affected and a part of my left abdominal wall. Was your initial colon cancer on the right side as well? Its not in my blood or bones or major organs yet so I am grateful for that. 😍 Thank you so much for reaching out!!!
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2 ReactionsHi Colleen! Thank you so much! I don’t feel so alone in this and now know there is some hope in the outcome! They did pathology for it when we got the biopsy at my oncologist gynecologist visit when I went for the visit to see why I was bleeding and hoping it was a tear in the cuff. Then they biopsied me hoping it was the uterine. Then when we found out it was metastatic colon, sigh, we sent it out to Gardant for more testing to see if we could possibly have other cancer markers in addition to colon to see if another treatment could be a more aggressive battalion! I don’t know what the results of that are as of yet. So far we are doing radiation in the pelvic area in the location of the bleeding mass and if there are no other markers I am set to start folfiri chemo Friday after Christmas. They are moving so fast my head is spinning. Thank you for asking! I hope you have an amazing Christmas and bless you for organizing this support group. It helped get me thru the first round and hopefully the next. 🙂
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1 ReactionI had Folfox for chemo, followed by radiation and then 2 major surgeries. Mine was central but a little on the left side as well.
Folfox is what I had first go when I had 3c… Because I didn’t tolerate the oxaliplatin well due to an allergic reaction we are gonna try folfiri. Wish me luck!!! 🍀 thank you!
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