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Bladder Cancer Group: Introduce yourself and connect with others
Bladder Cancer | Last Active: 4 days ago | Replies (171)Comment receiving replies
Diagnosed (finally) with invasive, high grade papillary urothelial carcinoma. After Cystoscopy and TURBT urologist suggested cystectomy soon. That’s when I quickly began pursuing care and treatment at Mayo Clinic. Waiting now for triage consult. I have all the symptoms and pretty high level of discomfort, ie. pain. Quite rundown. I’m hoping to get my appointment moved up and get going on a plan. Have seen multiple providers over past months and months who all wanted to believe I either had uti, interstitial cystitis or just low estrogen. Very frustrating and dangerous.
Replies to "Diagnosed (finally) with invasive, high grade papillary urothelial carcinoma. After Cystoscopy and TURBT urologist suggested cystectomy..."
@barbara1, just checking in. Sorry to hear about the diagnosis, but hopefully you are now on the path to getting treatment. How are you doing? Have you got appointments lined up?
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Yes, women are not diagnosed as quickly as men from what I understand and this makes us more likely to be farther along once it's caught. Very frustrating to think it could have been caught earlier. I just had my bladder replaced with a neobladder in November. Unfortunately I didn't get the all clear and will start immunotherapy next week. I do feel better mentally knowing the bladder is out though. All the best to you!!