Sural nerve biopsy

Posted by lillian32 @lillian32, Mar 23, 2019

Hi. I have severe peripheral neuropathy confirmed by nerve conduction studies. The results of the test confused my neurologist because it showed mixed axonal and demyelination get neuropathy. Originally I was diagnosed with a systemic metabolic disorder which caused metal transport problems which in turn caused a lot of other issues from bone marrow cancer to spinal cord lesions. I have the metabolic disorder treated and my blood levels are now mostly normal but I’ve been left with a permanent spinal cord injury, peripheral neuropathy and bone marrow failure. Just recently I’ve also been diagnosed with Sarcoidosis.

Anyway, after that long story...my Neuro is booking me for a Sural nerve biopsy to see if there’s any possibility for treatment and hopefully improvement in my neuropathy

Does this story sound familiar to anyone? I’m looking to talk to someone with a similar experience or has mixed peripheral neuropathy.

Thanks.

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Soledad02 | @soledad02 | 1 day ago

I’m not sure what category this would fall under. I was having pain in my left foot. I saw a new podiatrist three mos ago for a second opinion as not having luck with first podiatrist. He felt around my sural nerve and it was quite painful. He gave me a cortisone injection and I was like new the next day. No more pain until recently. I saw him two weeks ago and he offered to surgically cut the nerve so I’m not having to keep returning for injections. Has anyone had this nerve cut, if so, results?