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What does my dentist need to know about my NETs?

Neuroendocrine Tumors (NETs) | Last Active: Jan 9 1:11pm | Replies (15)
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@sophiarose

I don’t know why However
However I have learned you need to do research everything before you do anything
There is a lot of information out there
I have been with the Mayo group chat for 5 years and honestly I owe them my life
Be well

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Replies to "I don’t know why However However I have learned you need to do research everything before..."
amygirl | @amygirl | Dec 24, 2024

I just joined yesterday. Thank you all for your responses. Learning more and more.

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anon0995 | @anon0995 | Jan 9 1:11pm

Hello all! I am new to this Mayo Connect and responding to sophiarose: no epi because it can trigger a carcinoid crisis - the Mayo calls it "carcinoid syndrome". Most other NET websites call it "carcinoid crisis".

If you know about the following NET resources, please ignore the following:

netrf.org (they have LOTS of videos on YouTube - worth your time to view, IMO); lacnets.org; carcinoid.org; https://ronnyallan.net/. The latter lives with NETs and is regarded as a credible patient advocate; he lives in the UK, has a website as well as a Facebook page, and provides links to credible sources.

Thanks!

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