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Stage 1, very treatable invasive lobular carcinoma
Breast Cancer | Last Active: Jan 5 3:00pm | Replies (37)Comment receiving replies
I had stage 1 ILC 12 yrs ago. Did a lumpectomy. Did all follow ups every year. It just came back and because lobular is hard to detect it wasn’t caught until tumor was 6.7cm!! Ultrasound caught 4 mm. MRI which is not a common screening tool just now caught the largesse. Now waiting /testing to see if I have stage 4. Do I wish I had had a mastectomy 12 years ago - YES
Replies to "I had stage 1 ILC 12 yrs ago. Did a lumpectomy. Did all follow ups every..."
@moloney1231 I'm so sorry that this happened to you. I also was diagnosed with lobular, and it is a creepy type of breast cancer! Could I ask, did you have radiation and/or hormone blockers after your lumpectomy? And did it come back in the same breast?
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I had a double masectomy in April 2024 after my March 2024 diagnosis of stage 1 invasive Lobular BC. I was afraid that it would come back larger. Onco was shocked they found it via regular mammogram. They said it was 1.4 cm, but after surgery it was found to be 3.7 cm. In other words Lobular BC is a "Sneaky" cancer. I didn't want to live on pins & needles. I'm stressed enough trying to figure out How I even got BC. Was it something I did? Ate? Drank? Any answer would at clarity to my life. One thing is I have NO regrets having the bi-lateral masectomy. Just finished reconstruction & they look "normal". On meds still, glad no more mammogram.
Do the double masectomy- come out Swinging & Kicking Cancers Ass. Be Blessed my fellow sister in arms. We WILL beat cancer!!!