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@mmm

Hello from a 75-year old who has been dealing with two acoustic neuromas since 2006. At that time, I had Gamma Ray surgery to treat both of them, when they were tiny. The goal was to preserve hearing, and with the Grace of God, my hearing has been in tact. For five years, I participated in an NIH study which monitored the growth and development of the tumors. There was no active treatment, although I did have a spinal tumor removed when it threatened problems. The past two years, however, have brought significant balance challenges. I use a rollator which gives me some speed and confidence. Got to keep moving, so you CAN keep moving! I’ve seen a specialist (Neurofibromatosis-2) in Chicago, and he is in the “wait and watch” mode—MRIs indicate little change and there is nothing that he could do. I’ve done vestibular therapy which gave me exercises I can no longer do. So…I live each day to the fullest and am grateful for all of the things I still can do.

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Replies to "Hello from a 75-year old who has been dealing with two acoustic neuromas since 2006. At..."

I have been recently diagnosed with this condition as well as normal pressure hydrocephalus.
On Dec 9, I had a shunt placement and healing from this surgery to continue on with another surgery in February to remove the schwannoma or acoustic neuroma and I will lose hearing in affected ear.
This seems like so much to grasp for myself. Scary stuff.