I could have written your post I feel like! August 2023 I started getting sores on my tongue. One didn't go away for a few weeks so they did a biopsy and removal of it. It showed "General traumatic ulcer". Since then, I have had them off and on. Right now, I have three, including one on the very tip of my tongue. They vary from ulcer looking sores to swollen tastebuds to deep crevice cracks. I have seen a dentist, specialty dentist, and oral surgeon. I hated magic mouthwash, and because it only lasts until you drink something and wash it away, I don't use it. I do keep a bottle of viscous lidocaine in my purse at all times. I drink over 200 oz of water and sodas and such a day because not drinking constantly makes my mouth hurt. I recently also started using Biotene. Every time I go to the dentist, he comments on how dry my mouth is. It was much, much better when I wear my nightguard at night so that I do not rub my tongue against my teeth edges, but I had two crowns a month ago so I need a new nightguard. I also am so utterly exhausted that I was tested for Narcolepsy and despite not having it, my psychiatrist put me on a sleep agent for it to just be able to function. I have also developed high BP in the last year. My psychiatrist swears I have something autoimmune and that no one is looking at the whole body, just treating symptoms. Mayo Clinic declined to see me about a year ago.
My ANA in November 2023 was 1:1230 and Dense Speckled. All my titers for the specific diseases were negative. I saw a Rheumatologist who looked at my results and she said that some people have a positive ANA for no reason and she didn't think I needed to see her. I have a new PCP and she didn't remember I had had an ANA so she ordered another one a few weeks ago. My ANA is now 1:5,120 and Homogeneous. My PCP does not like that increase and says the change in pattern is worrisome, so she is referring me to another Rheumatologist (actually an APRN that she really likes), but they can not see me until April.
NOW, I am having all kinds of cortisol tests. My Dexamethasone Suppression Test was just barely high, but my 24 hour urine was normal. I have an adrenal CT on Friday.
It’s like a murder mystery, trying to put the facts together. Almost 4 years I have had pressure in my head , two ANA test 1:640/ 1:320 two DSDNA both in the Indeterminate range , other antibody tests show negative…what can I say other then what I tell my self .. keep faith !