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Thank you for sharing.
You did give the antibiotics a go and then made your decision.
With my feeling well, no fatigue, eating healthy, similar to the Mediterranean diet, doing airway clearance and exercising with no problem, good pulmonary function test, I am able to do all I need to do for myself for the BE/MAI etc. etc. I just haven't built a wonderful "brick house" but have the hot water tank turned up and the aerators off of the faucets and boil all waters. It is just the clearing of my 'throat' nearly all the time, which does bring up clear mucus most of the time and other times a light colored mucus, mucus plugs and all the other substances like moisture and saliva etc.
I was diagnosed with BE in 2022 by my primary doctor via C Scan and confirmed all in Oct. 2023 by NJH. Small amount of MAI. I started telling my primary doctor something was wrong and that I was bringing up a small deep colored section of mucus, that started in 2018. It took a 25 lb weight loss for him to say: "We need to do a C Scan." I still feel as well as I did prior to 2018.
P.S. I am ahead of you by two years, I'm 82. Always good to hear from those in my age category to know how they are doing etc.
Yes, thank you for "captains of our own ships."
Barbara
Replies to "Thank you for sharing. You did give the antibiotics a go and then made your decision...."
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Barbara,
Thank you for your reply and I'm glad you are doing okay also.
When I was diagnosed last year, I was referred to a dietician because I have such a low BMI and a weight, at the time, of 89 lbs. and the fear was that I may lose weight as my condition progresses, and the antibiotics themselves can cause some weight loss as a body adjusts. My weight has always been around 95 pounds and rarely over that in my adulthood. (I was a competitive runner in my earlier years and my metabolism has been "stuck" in the 95 pound range for many years).
The key to my living with MAC/BE is to keep mentally busy. Being artistic, I have taught myself Adobe's Illustrator and Photoshop programs and have learned so much. For me, focusing on something other than my condition and worrying about my future is counterproductive. My creative side provides "rest" from my health issues and gives me more time to enjoy life, though not ideal by any means. My mother lived to 101 years and my father lived to 96. Neither had what we have health wise -- but they did have longevity with few health issues. I will strive for longevity too, which may or may not be reality as nothing in life is guaranteed.
Take care and best wishes.