Thank you my friend! I am lucky. I live in the Philadelphia suburbs and had my choice of Hospital of the University of Pennsylvania, Thomas Jefferson University Hospital-Sidney Kimmel Cancer Center and Fox-Chase Cancer Center. I chose Fox-Chase based on reputation and an easier commute to get treatments. Once I completed seeing all the docs and specialists, my treatment (diagnosed in Jan/Feb) started May. Fox Chase also had a radiation treatment satellite office only 10 minutes from my home, which worked out great.
I would press the Petscan issue and perhaps if they refuse to do one, tell them you are getting a second opinion. Hopefully they cave - otherwise seek the second opinion.
Thank you for the kind words!