Thank you. 🙏🏽 I mainly also want the petscan to make sure I’m not covered up in cancer before going through tx in just these two areas (head/neck). I’m shocked they said it was overkill and they weren’t doing it because of the radiation? Whaaa? It doesn’t have THAT much, so that’s one thing that actually made me want it more, the excuse.
And, they don’t have ANYTHING yet even showing that I have cancer in my neck other than experience that it might have cells that spread there.

I’m going to one of the radiation proton centers and it almost feels as if they don’t want to risk and have anything mess up their having another candidate for their treatment program vs providing the patient the absolute best protocol for their particular case.

I hate that this is the way I feel, but the way I was rushed through this appointment, which consisted of MANY specialists, the ones that were key just seemed to be on a sales pitch.

I’m not sure how to go about finding another oncologist for a second opinion, especially since this is chugging along so quickly. And, I’m at the best facility where I live. But I REALLY want another set of eyes on this and don’t know how to go about it.

I apologize for dumping on you. I guess I’m hoping others might see this as well. I’m in so much pain from the post surgery migraines that it’s tough to advocate for myself effectively.

Here’s to you remaining cancer free!!! I hope they got every last cell!