You are an inspiration @pmmar1
I think you're doing everything exactly right and prioritizing your health.

@blm1007blm1007 It's such a personal choice in deciding whether to go on the medication—and that was what was stressed at the conference. Dr. Marras from Toronto gave a presentation about the 'algorithm' he uses to make the decision on whether to treat, but in the end, the doctors agreed it's a subjective decision that also involves the patients' own wishes, what seems medically necessary depending on the severity of symptoms, bacteria involved and condition (cavitary vs nodular) and so just seems to depend on a lot!
What Dr. Addrizzo-Harris did tell me was that all of the new centers that are being accredited to treat BE patients must adhere to the same method and approach. One requirement is that the BE doctors at each treatment center meet as a team weekly to review and discuss their patients' records. They must reach a consensus about how to proceed with each patient which takes the 'subjective' piece—based on each doctor's individual experience—out of the equation. It gave me a lot of peace of mind to know that there is thoughtful discussion happening between the doctors. Also, that less experienced doctors are able to gain experience through that process and unique scenarios or outlier cases are heard which leads to learning.