Connect
← Return to Newly diagnosed and scared
Discussion
Comment receiving replies
Thank you so much for sharing your story. Because of where the tumor is, they believe chemo/radiation will be most effective and (I suppose) more humane. I just turned 60 yesterday, and hearing from someone close to my age who has beat this gives me hope.
Replies to "Thank you so much for sharing your story. Because of where the tumor is, they believe..."
I am a bit over 8 years out from stage IV and I’m 62 now.
Though I have many disabling side effects I’m still alive!
Make sure you’re open with your care team about your stress, I kept my personal feelings to myself and I really shouldn’t have.
If you develop Tinnitus after your first round of Cisplatin tell your care team …I didn’t say anything and now I’m battling tinnitus and chronic migraines for over 8 years now.
I can pm you with a complete run down if you like?
Keep the faith and fight the good fight!
MOJO
Connect
I too have had HPV tonsil cancer and just wanted to say all of the comments here are spot-on. Don’t be afraid of the unknown! Fight like you’re in a boxing match and you MUST be victorious! It’s a tough road, but it’s doable if you don’t give up. I was 62 when I went through this process. It’s gets better just give yourself some time. I thought I would be better in a month and pushed myself too hard. LISTEN to you Drs but more importantly your body. 🙏🏼