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Anyone else doing this alone?

Caregivers: Dementia | Last Active: 1 day ago | Replies (11)

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@catlover64

@nhbfan I understand your envy. I'm taking care of my dad alone. My mom and sister passed away over 10 years ago (my mom first; my sister two years later). My daughter lives in another state. I also work full time. Luckily, I am a remote worker. Working from home gives me flexibility that I wouldn't have going into an office every day. My husband helps where he can (for example, takes my dad to get his hair cut). My dad has VA benefits that allow us to get a home health aide several days a week, which helps a lot. But the management of everything falls on me. And the management seems to be harder than it should be. Multiple phone calls to get one thing resolved while you're trying to work, take care of a household, have a relationship with your spouse and daughter, and have something like a life. My husband and I have tried to go on vacation three times. I don't want to say it was "disastrous" - that's a little hyperbolic. But, we didn't get to go. It's putting a strain on our relationship. We both feel trapped. But, I keep working on finding ways we can have alone time. When it comes to the point where my dad's care becomes overwhelming and requires more time than I can commit too, I'll have to find a group home or memory care facility for him. Dementia seems to run in our family - my grandmother and at least one of her siblings; my dad and one of his sisters. I've told my daughter that I'll prepare as best I can for the possibility that I'll end up like my dad so I don't become a burden on her - an only child.

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Replies to "@nhbfan I understand your envy. I'm taking care of my dad alone. My mom and sister..."

I can relate to your situation. And for me, it’s not just the duties required, but my dad often calls my name for any and no reason….like to take a cup he used to the kitchen, hand him his newspaper, go to the mailbox 20 times a day, bring him water when he already has a glass, empty his waste basket, pick him up more handkerchiefs, etc. His requests are nonstop, even when I’m having dinner. So, focusing on remote work is challenging. I have an office and plan to start using it more next year, if he’s still in the home then.