No sentinel lymph node removal with early-stage breast cancer?

My doctor mentioned that he could remove no lymph nodes while standing in the hallway. I had the surgery, and he removed 9 perfectly good lymph nodes. I have had lymphedema after surgery and whole body looks terrible shoulder cracks. It is painful. You will need someone to help you if you are like me and could barely hold a cup of water. Couldn't even mouse for a long time. My hand still keeps me awake 8 months after. The plan was to test 1 lymph node on each side as I had stage 1 on both breasts. I called another hospital a few days after the surgery and was told by a doctor that he would not take my doctor's leftovers. I found out recently *heard on the news that the hospital I went to has a grade D in surgery. My surgeon was a 5 out of 5 on the net . . . ! queston mark!! I was awake last night looking at my veins that are visible through my skin. My skin looks like someone who just lost 100 lbs. very saggy, etc. I wish someone would tell me how it is OK for me to be treated like this and what they would advise. I have had an open wound ever since month 3 after surgery. I am concerned about how I will get it repaired with having so many lymph nodes removed. Your life could be forever altered like mine. If you are like I was before surgery you don't have your normal brain to absorb it all, because your brain wants to kick out the miserable stuff. I did not know anything about breast cancer. Can anyone tell me what they would do in my present situation. I have been treated very differently by medical staff after surgery. I made it known to the doctor right off the bat that a plan to test 1 lymph node on each side that morphed into having 9 good lymph nodes removed was not something that I thought was fine. My PA thinks it is fine. Other doctors think it is fine or say nothing. People are very ignorant about the lymph nodes they do lots of good things for you including fighting cancer. Try to get all the knowledge you can and get at least one more opinion. I did not. So much for trusting the doctor.

Thank you for such an informative response. And extremely happy you are doing. This is a long tough journey.
I was treated at MSK. They adopted a new policy of not removing sentinel nodes in patients who particular tumor characteristics.
Stage 1 - vGrade 1 - 14mm - ER PR +
Her2-. And clinically negative on US.
So no sentinel nodes removed.

Had my lumpectomy and achieved clear margins were achieved. Onco score was 4.
So I was also given a choice not to radiate or to radiate.
So I did not. I am 68.
Is any of this similar to your situation.
Not certain if I have made all the right choices.

What follow up does Mayo offer.
Mammogram at 1 year or 6 months with US?

Hello 🌠

It IS a long tough journey when any of us are faced with a breast cancer diagnosis + of course the range of emotions are extensive. The challenges presented are daunting + we draw on a level of resilence, strength + courage we may not have previously realized we had...
Truly the word
💖BRAVE
HEART 💖
Conveys the Spirit ✨️ within us who are "breast cancer patients"...

Thank you for such an informative response. And extremely happy you are doing. This is a long tough journey.
I was treated at MSK. They adopted a new policy of not removing sentinel nodes in patients who particular tumor characteristics.
Stage 1 - vGrade 1 - 14mm - ER PR +
Her2-. And clinically negative on US.
So no sentinel nodes removed.

Had my lumpectomy and achieved clear margins were achieved. Onco score was 4.
So I was also given a choice not to radiate or to radiate.
So I did not. I am 68.
Is any of this similar to your situation.
Not certain if I have made all the right choices.

What follow up does Mayo offer.
Mammogram at 1 year or 6 months with US?

That’s very interesting. I wonder if there is a paper published that says that no sentinel lymph node needs to be removed in stage 1. What was the size of the tumour on histopathology ?

I had my DMX w/AFC and bilateral sentinel node removal at The Mayo Clinic with Grade 3 DCIS HR+ diagnosis.

Which Mayo Clinic did you go to? I considered Mayo in Jacksonville, FL, but the commute is 3 hours each way.
After this week, I am reconsidering. I thought I was happy where I am, until I was informed by the cancer surgeon that I WILL have a bilateral mastectomy and will lose both nipples. They found two more spots on MRI this week. I won't get those biopsied until Mid-January. The cancer is in only one breast. I got no justification for having to lose both breasts and nipples. I can' handle a double if there is risk that I'll have to go thru this with the other Breast, I really don't want to lose my nipples. Apparently, the cancer is deep, and the nipples are not at risk.
Mayo is starting to sound MUCH better despite the drive.