Mikhailsapenko, my experience was similar to yours in that I had been in/out of the ER for 11 years prior to having a blockage in my small intestine. And there was the main neuro tumor and many others. Of course over those 11 years I’d had multiple CT scans and a couple of MRIs, but they showed nothing. As it turns out, my tumors do not show up on these scans. That was in 2018. Since then I only have Gallium 68 Dotatate PET/CTs as that’s the only way they can see what’s going on with the tumors that are scattered around my body. Maybe that would be an option for you.
I understand how frustrating this can be, but glad you found this group as you navigate this situation.