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Anyone taking tibsovo for bile duct cancer?

Liver Cancer | Last Active: Jan 4 7:47am | Replies (11)
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@carmita

I also ben taking tibsovo for a year,it's wonderful,keeping me stable.
Did a Y 90 treatment radiation dindt fully work. The radiologist want me to try Y 90 with chemotherapy. I have to think abaut it,wait for God guidance. I also had terrible itching and rashes,after the Y90,try many medicines,I had acquipunture, at the same time I took antibiotics ,I feel better,yet I don't know what really help me. Sorry my Englis grammar is not great,I will do my best .

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Replies to "I also ben taking tibsovo for a year,it's wonderful,keeping me stable. Did a Y 90 treatment..."
John, Volunteer Mentor | @johnbishop | Jan 4 7:47am

Hello Carmen @carmita, Thank you for the private message. I thought I would respond to you by replying to your first post here on Connect so that others that may have additional suggestions or information may also be able to respond.

You mentioned you have been diagnosed with bile duct cancer stage for two years and would like to talk with others about it. You were hoping to communicate using Zoom meetings or telephone conversations which aren't available through Connect. I thought I would share a reference that might provide some answers to questions you and others may have.

The Cholangiocarcinoma Foundation (CCF) - https://cholangiocarcinoma.org/
-- Virtual Support Groups: https://cholangiocarcinoma.org/virtual-support-groups/

Hoping this helps you find some answers.

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