← Return to Husband diagnosed with MCI, meeting criteria for probable CAA.

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@cdk

Thank you for writing. Things seem to be progressing faster now. He now has involuntary right-sided movements, quite strong arm flapping and realistic hallucinations, as well as orofacial issues, tongue biting, and able to tolerate only soft foods, and losing too much weight. His speech is becoming difficult and slurred when he can find words. Stroke and seizures and Alzheimer’s have been ruled out. It’s the MCI and microbleeds. Losing him every day is just so sad. Lots of lucid times too, that quickly flee. This is very lonely, as you know.

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Replies to "Thank you for writing. Things seem to be progressing faster now. He now has involuntary right-sided..."

Thank you for your hugs. It means a lot that you are here. His MRI has been rescheduled for this coming Thursday and his neurologist has sent more labs for autoimmune screening. Has anyone here had dementia from autoimmune encephalopathy? His deterioration has been so rapid these last few weeks he’s almost unrecognizable. I wonder how his CAA contributes to all this, if there is any hope that treating autoimmune encephalopathy (if verified) could reduce his most destructive symptoms. Maybe I’m finding hope where there is none.