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Support Group for Those of Us Living With Mild Dementia
Aging Well | Last Active: Feb 10 8:59am | Replies (201)Comment receiving replies
New Topic, do you feel upset when others say, “you don’t LOOK like you have dementia, you don’t SOUND like you have dementia, I forget my keys too…
I get defensive, and offended when someone challenges my disease.
This morning I was on a ZOOM meeting with the people from DAA. (Dementia Action Alliance) DAAnow.org
They suggested a few ways I can handle those remarks that upset me.
“Do you hold your keys in your hand, and you don’t know what to do with them”.
“Do you walk into your own kitchen and not know what room you are in”.
Replies to "New Topic, do you feel upset when others say, “you don’t LOOK like you have dementia,..."
I give you a hug for admitting you have mild dementia. Most people are in denial and make lots of excuses as to Why they can’t remember “what am i supposed to do with these keys in my hand”? Would be a scary moment.
@SusanEllen66 I can relate to that! I have fibromyalgia and some related autoimmune illnesses and I get the same thing: “you don’t LOOK sick …!?” I often am made to feel like a sloth when I mention lack of energy (much less motivation most times!) to do simple household tasks!
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They just don’t get it. They want to make you feel better.
I guess you have to say well. The test show that I have it. Not much you can do about it.