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Do not want to take steroids.

Polymyalgia Rheumatica (PMR) | Last Active: Dec 22, 2024 | Replies (39)

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@robinrae

I have PMR also and did not want to go on prednisone because of panic attacks I had while on it years ago for something else. I am on Low Dose Naltrexone for the PMR. For me, there have been no side effects and the pain has greatly diminished. I noticed some improvement after a few weeks. I've been taking it for 3 months now and am seeing even more improvement.

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Replies to "I have PMR also and did not want to go on prednisone because of panic attacks..."

Awesome!!!!! I am so glad you found LDN, such an under-rated source of relief with basically no side effects for most. My daughter has long covid and found a wonderful doc at Mt Sinai Hosp in NYC who recommended LDN for her non-stop fatigue, aches, flu-like symptoms, no energy and so much more. It has helped her regain her life! She still has flares, but nothing like before, even planning her wedding for June!
She suggested I contact this doc for PMR, as I also have lifelong panic and anx disorder and want nothing to do with any drugs that could cause anxiety. I was petrified when I heard steroids are drug of choice. I did speak with the doc and she ran a ton of bloodwork that no rheum or other doc had done. She was all for trying LDN. I was doing my research on it when the pain in my legs began to dissipate. For a couple of months now, they are much better. Shoulders, upper arms, rotator cuffs still a problem. But I am grateful for the lifting of pain in my legs and the horrible, crippling Bakers cysts seem to have abated also.
I would take LDN in a minute and still might for my arms if they don't improve soon.
My very best to you!!!! Many docs are using LDN now and recommend it highly. Not going to work for everyone, of course, but I'd try it first before steroids.
May you be painless soon for the rest of your life.