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@hanscasteels

I’d rather say I have been on belly- button watch. The pace of activity has been very slow, it seems that none of this “is a big deal” - the first urologist I saw said “everything is fine” despite. PSA reading of 26… it’s been shit show, frankly. The oncologist yesterday said he’d refer me to someone else, cardiologist is involved because I involved them… it’s been very colloquial and provincial This is when I was told that, while the PET scan shows it localized, the lesion is highly aggressive and high risk. It’s mind boggling. No team structure. Individuals making individual decisions….

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Replies to "I’d rather say I have been on belly- button watch. The pace of activity has been..."

You have to have a consultation with a "Prostate Cancer Tumor Board " aka a Multidisplinary Team of experts .
ASAP get a referral to a major cancer hospital in Toronto -- INSIST ON IT .
YOU HAVE TO BE YOUR OWN ADVOCATE -- DO NOT BE DETERRED .