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Adhesive Arachnoiditis & the Effects on Walking
Spine Health | Last Active: Jan 30 5:32pm | Replies (75)Comment receiving replies
I have looked for treating doctors & even tried to give PCP information, but little to know interest. One PCP said she would not even give me Medrol dose pac, for fear that i might get Cushing's disease. She basically left me high & dry, had to go to ER & wait 6 hours to get seen. I've had ER docs, tell me i''m crazy, more or less. I have tried to be my own advocate, repeatedly. This is as frustrating as the condition itself. Think many doctors are tired of practicing medicine & there is big shortage of specialists in Phoenix valley & snowbirds make it worse. I have had 5 PCP's quit in last 2 years. Having an accurate diagnosis is important, but the adventure starts after that
Replies to "I have looked for treating doctors & even tried to give PCP information, but little to..."
I'm up at 430am as soon as I recieve that book I'm going to send you a Pic of it. It's WHAT DRS NEED TO KNOW ABOUT AA. YES DRS NEED TO KNOW.
ITS FROM DR TENNANT. Take it with you to the office. Ask if they would be interested in learning something new. Bc they may not be familiar w our issues , problems, pains ,anxiety or anything at all about this disease.
I pray for you laurean. I want to help as much as i can.
Look on amazon about all his book especiallyones on our disease bc they may not understand as much as they think they do.
Sending prayers. I'm in pain in my rear and hips this morning so bad I'm up already but not moving much.
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I've been reading Dr Tennants books also.
Very informative
Get an extra book just for your physician to read bc most have no clue until they read these books.
Lauren I pray 🙏 your doing better. I'm in VA and it has taken over 10 years for diagnosis and it's great to have a diagnosis but devastating bc of what you have to endure. I'm trying to find out how you Archie and whomever would like to do pm in private over our issues. I will look this up and see what I can find out.