Thanks, always great to get other insights. Good luck with your journey.

Thank you!

ILC Stage 1 in left breast, early catch 2 years ago next month. Initial meeting with surgeon had me ready for in-out of Lumpectomy. But MRI found, biopsy confirmed second tumor same breast, making lumpectomy an option “only if patient motivated” per the cancer board. By that time had been able to do lots of research on ILC and talk with family members about their breast cancer journeys( none with ILC!) , and what if anything they would do differently given the chance. My older sister did not regret having lumpectomy the first round, but did with a recurrence 10+ yrs later wish she had having done double vs single mastectomy as the anxiety surrounding required surveillance has for her grown increasingly harder to deal with each year. From all that info for me at nearly 72 yrs old my decision-making all became about maximising my quality of life going forward and double mastectomy with reconstruction was my decision, supported strongly by my husband. Sentinel nodes were clear so no radiation. Did several months from b4 surgery and after on Anastrozole but d/c’d, again based on my quality of life goal. Other than ‘hating’ the expanders (felt like little bricks) and dealing with the time it took to get my implant surgery scheduled, I sailed thru the entirety of this with no issues to-date, knock-on-wood. First round of annual check-ups with surgeons and oncologist in late summer all went well. Will have MRI next year as bi-yearly is the protocol for implants. NO regrets from having chosen this path! Wishing you only the very best on on your journey as you now seek and find the path that’s right for YOU.