My story of prostate cancer:
I retired in March of 2018. Was diagnosed with pc sometime in July of 2018 and had surgery to remove my prostate. I was a 4+4.
I had psa tests every 3 months and then in late 2019 my psa started rising. I have had all of my diagnoses/treatments at the Mayo Clinic in Arizona. In January of 2020 I started radiation treatments every weekday for 3 months. After this my psa was not detectable. I tested every 6 months and it stayed undetectable until January of 2024. Had mri and pet scan and cancer showed in my prostate region. So more radiation but only for 5 days and in different area than previous treatment. Then was sent to oncologist. I was given my first lupron shot in March of 2020 and also started taking arbiraterone tablets daily. The only side effects I had at this time was hot flashes, bothersome but easy to deal with. 6 months later my psa. Still undetected and had my 2nd Lupron injection on 9/30. A week after this injection I started feeling very fatigued and could not walk more than a 100 yards before my legs became super weak and wobbly. I have started physical therapy for about a month now 3 times a week as I read on this forum it might help. So far it has not and I can barely walk to my car from pt clinic. I feel like only half a man. My family always has to ask before we go somewhere “will you be able to walk that far” ? I always say yes even knowing I will be exhausted the whole time.
I will get my 3rd Lupron injection in March of 2025. I am concerned that my fatigue will even get worse after that. If it does not sure what I will do. (Hopefully not a wheelchair as I do not want to be a real burden on my family)
I see my oncologist in January 2025 to go over a bone density test I had last month. I will discuss my fatigue and weakness with her then and see if there’s
An alternative treatment option.
I am 70 and still beating this cancer but it is a rough road. I have read on hear even after the last Lupron injection it takes a longtime for testosterone levels to get back up which would elliviate the fatigue and weakness with.
Anyone else with a similar treatment course and similar side effects??
I'm 73. I had a similar reaction after my third lupron injection. Walking was difficult, my hips, knees and ankles were really sore.
I ramped up my yoga exercises to almost daily at home and once to twice a week in a studio. Yoga is the best. I also started back in the gym lifting weights. It is helping but you can easily overdo it so the initial startup has to be gradual. I have learned that you have to physically fight the loss of testosterone. Yoga is my main go to remedy.
Thanks for your response. After reading a couple comments on here about increasing my prednisone, I asked my oncologist about increasing mine. She said not a good idea as the effects of increasing it could not be good. I see her in January snd I will discuss with her again. Maybe when she sees how exhausted I am just from walking from the parking lot at mayo in phoenix i can get a different opinion from her
Thanks again for the suggestion
Hey Kette, your oncologist seems a bit stubborn considering all the positive comments from others concerning increasing prednisone.
Also, can you switch to Orgovyx? We seem to tolerate that a lot better. Sounds like you need a second opinion for these issues. We all confuse the concept of loyalty with reality when it comes to our doctors. We don’t want to hurt their feelings, make them angry with us, etc. Meanwhile, WE pay the price!
I'm 73. I had a similar reaction after my third lupron injection. Walking was difficult, my hips, knees and ankles were really sore.
I ramped up my yoga exercises to almost daily at home and once to twice a week in a studio. Yoga is the best. I also started back in the gym lifting weights. It is helping but you can easily overdo it so the initial startup has to be gradual. I have learned that you have to physically fight the loss of testosterone. Yoga is my main go to remedy.
That makes sense. Before I had cancer (and the related spinal injury), stretching in the morning was desirable but optional.
After the spinal damage and starting on ADT + a -lutamide, stretching in the morning has become mandatory. If I don't do 30 minutes of physio stretches and strengthening exercises before I come down for breakfast, it's probably not going to be a good day, physically-speaking.
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I'm 73. I had a similar reaction after my third lupron injection. Walking was difficult, my hips, knees and ankles were really sore.
I ramped up my yoga exercises to almost daily at home and once to twice a week in a studio. Yoga is the best. I also started back in the gym lifting weights. It is helping but you can easily overdo it so the initial startup has to be gradual. I have learned that you have to physically fight the loss of testosterone. Yoga is my main go to remedy.
Hey Kette, your oncologist seems a bit stubborn considering all the positive comments from others concerning increasing prednisone.
Also, can you switch to Orgovyx? We seem to tolerate that a lot better. Sounds like you need a second opinion for these issues. We all confuse the concept of loyalty with reality when it comes to our doctors. We don’t want to hurt their feelings, make them angry with us, etc. Meanwhile, WE pay the price!
That makes sense. Before I had cancer (and the related spinal injury), stretching in the morning was desirable but optional.
After the spinal damage and starting on ADT + a -lutamide, stretching in the morning has become mandatory. If I don't do 30 minutes of physio stretches and strengthening exercises before I come down for breakfast, it's probably not going to be a good day, physically-speaking.