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Still have symptoms after surgery

Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (14)

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@vinnie694

I’ve been on Ocreotide for about 18 months it has worked great on the hot flashes, started working within days of the shots. I was experiencing over 25 episodes daily. .. I hope they find something for you, for me they were a constant reminder…

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Replies to "I’ve been on Ocreotide for about 18 months it has worked great on the hot flashes,..."

Thank you very much for sharing info. What is not clear to me the situation with the thing is if all lab tests are ok, 5hiaa especially, there is no carcinoid heart desease issue?