Hi all,
I have just found this group. I was actually looking for something maybe more intimate but landed on here. I was so frustrated with family members not believing me or thinking I'm not doing this right, have I tried that, etc. This disease has financially devastated me so no, not making this up!
I wake up each day and I talk to my Higher Power (whom I call God). I remind myself as often as I must throughout the day to let go of that which I cannot change. I try to make connections with people when I do go out but if I'm doing that, that means I am pushing myself and I will pay for it and land back in bed miserable. Sometimes it's worth it and sometimes it's not. So, I guess it comes down to I live one moment at a time. Peace be with all of us. 🙏🏼❤️‍🩹