Hi @adoptivemother @ellie2902, the originator of this post, hasn’t been active on here for a few months. By tagging her, hopefully she’ll receive a notification and will respond to you.

I found a couple articles that might be helpful regarding having access to medical records for an adult children.
From National Law Review:
https://natlawreview.com/article/three-critical-legal-documents-every-parent-should-get-place-now-to-safeguard-their
From Focus:PHI
https://spanadvocacy.org/wp-content/uploads/2021/09/Understanding-HIPAA-What-Parents-Need-to-Know-About-Privacy-Their-Adult-Childs-Health-Information.pdf
Whenever your daughter has an appointment with a new physician, there should be a HIPPA form that she has to fill out. There are spaces where family members or friends can be listed with whom records may be shared.

Do you know if your name has been added to the list?

@adoptivemother

If your daughter's neurology appointment is at Mayo, usually when check into your first appointment the desk attended will explain the form to allow release of information to another individual. She will need to fill out and sign the form for each person she wants to share medical records with. That form is then scanned into her medical records at Mayo.

Have you discussed with your daughter if she is willing to share her medical information?