Muscle spasm in trapazoid area of my back

Posted by ksdm @ksdm, Nov 20, 2024

I have seen seven doctors at least, six pain management clinics, an acupuncturist, a chiropractor, two physical therapists, a neurologist, and a physiatrist. NO one can stop my spasm. Every 15 seconds I get an excruciating spasm that lasts about 12 seconds. This is all day long, every day, since the end of June. I am taking Valium, Tylenol and sitting on my recliner with my heating pad all day long. I am about to give up. The only positive, is that it goes away at night, probably from all of the meds I take during the day.

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May I ask you how you put a patch on the trapezoid area of your back?

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@heyjoe415 & others, Hi guys! Gals! and in-betweeners! Just an update: I have been trying everything (including NOTHING - sitting still) and EXERCISE! Slowed down on the light aerobic walking in favor of "squeezing" and stretching - NO reps. My epidural was in L5-SI tight joint. Diagnostically it helped 100% for 24 hours. No one followed up so I pushed to get into an orthopedic surgeon (who said I have MULTIPLE issues, but xrays showed no change but ordered an MRI) and I returned to the pain doctor. who said I should have more epidurals in the inter-joint area. (the epidural is not the intermuscular type, so I can have more steroid without the side effects of intermuscular). I was on a short stint of Ketorolac (a strong NSAID which I fought tooth and nail for with three appeals to insurance). My spinal stenosis, my fusion (causing pressure AROUND L3, L4, L5), my arthritis, stenosis, impinged nerve, piriformis dysfunction stimulating sciatic pain, and good ole fashion shin splints from weakened muscles (from me walking too hard with weakened muscles) and sitting too much combines for TROUBLE. However - This is a big however - I have not woken with burning neuropathy/radiculopathy pain for 2 nights! Daytime is better. After 4 months, this is a good sign. Going to a fantastic MFR guy has helped me isolated and deconstruct glued muscles in the area near the spine and along the sciatic track. If I didn't expect so much from my 67-year-old body and could relax more I'd probably have half this problem. I wanted to point out how it's multifaceted. gotta question everything and get in their faces. 1/6/25 I go to the Kinesiology doctor who everyone reveres. It is after the fact of course, but there's nothing I can do about that. he's the best so I will wait.

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@loriesco

@heyjoe415 & others, Hi guys! Gals! and in-betweeners! Just an update: I have been trying everything (including NOTHING - sitting still) and EXERCISE! Slowed down on the light aerobic walking in favor of "squeezing" and stretching - NO reps. My epidural was in L5-SI tight joint. Diagnostically it helped 100% for 24 hours. No one followed up so I pushed to get into an orthopedic surgeon (who said I have MULTIPLE issues, but xrays showed no change but ordered an MRI) and I returned to the pain doctor. who said I should have more epidurals in the inter-joint area. (the epidural is not the intermuscular type, so I can have more steroid without the side effects of intermuscular). I was on a short stint of Ketorolac (a strong NSAID which I fought tooth and nail for with three appeals to insurance). My spinal stenosis, my fusion (causing pressure AROUND L3, L4, L5), my arthritis, stenosis, impinged nerve, piriformis dysfunction stimulating sciatic pain, and good ole fashion shin splints from weakened muscles (from me walking too hard with weakened muscles) and sitting too much combines for TROUBLE. However - This is a big however - I have not woken with burning neuropathy/radiculopathy pain for 2 nights! Daytime is better. After 4 months, this is a good sign. Going to a fantastic MFR guy has helped me isolated and deconstruct glued muscles in the area near the spine and along the sciatic track. If I didn't expect so much from my 67-year-old body and could relax more I'd probably have half this problem. I wanted to point out how it's multifaceted. gotta question everything and get in their faces. 1/6/25 I go to the Kinesiology doctor who everyone reveres. It is after the fact of course, but there's nothing I can do about that. he's the best so I will wait.

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I am not interested in anything that last 24 hours!! I want a cure.

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@ksdm

I am not interested in anything that last 24 hours!! I want a cure.

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@heyjoe415 you SHOULD BE. Because it was a diagnostic $100% success! Now they will (next week) go for the steroid injection in the joint! Wow, I didn't understand your snappy response. you must be in pain. We ARE going to die at some point. There is something which won't be "curable" and there are going to be a lot of stops and starts along the way. I've had 4 MONTHS of sleepless nights. I am finally getting some sleep and have had two nights in a row without a burning shin! I AM going to get myself HEALED. But there IS NO CURE for my degenerative disc condition. Things will continue to age, deteriorate and fall apart. That is something I have to accept about my physical body. I am just going to need to keep addressing things and trying things. If you think this group will find you a "cure" you are in the wrong place. We can only provide our experiences and ideas to "help" to make us comfortable and to "resolve" FLARES and ISSUES. Everyone's unique make up comes into play. I have found "treatments" here which resolve problems, but no "cure."

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@loriesco

@heyjoe415 you SHOULD BE. Because it was a diagnostic $100% success! Now they will (next week) go for the steroid injection in the joint! Wow, I didn't understand your snappy response. you must be in pain. We ARE going to die at some point. There is something which won't be "curable" and there are going to be a lot of stops and starts along the way. I've had 4 MONTHS of sleepless nights. I am finally getting some sleep and have had two nights in a row without a burning shin! I AM going to get myself HEALED. But there IS NO CURE for my degenerative disc condition. Things will continue to age, deteriorate and fall apart. That is something I have to accept about my physical body. I am just going to need to keep addressing things and trying things. If you think this group will find you a "cure" you are in the wrong place. We can only provide our experiences and ideas to "help" to make us comfortable and to "resolve" FLARES and ISSUES. Everyone's unique make up comes into play. I have found "treatments" here which resolve problems, but no "cure."

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I apologize Lorie. My comment was way too short and didn't take into account your situation. Again, my apologies.

I'm getting a hip replaced in June. In the meantime, it's very painful. On my last visit to the Dr, she gave me a cortisone injection that included lidocaine. She said I'd walk out pain free, mostly due to the lidocaine, and while it lasted about a day, I was grateful for any relief.

I should have shown more empathy to your situation and thank you for pointing it out.

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Hi ksdm
I wrote a long reply but it just disappeared off the screen.
So briefly, I have exactly the same condition as you, and I've suffered terribly for 47 years. Like you I've done the rounds of Doctors and private therapists and have a backlog of debts from all the expense of trying to find a cure. I was even referred to GUYS Hospital for RFA treatment but there was a mix up and after traveling for nearly 4 hours, I was told they had referred me to the wrong department and I would have to make another appt. That was about 2 weeks ago.
However, there is one treatment I have tried which seems to be managing my better much better. After being housebound for so long, it is brilliant that some days now I can go out without any pain.
I bought a Bio Wave Go machine, following success with one at a Physiotherapy Clinic. I have a travel version of it. It was quite expensive so I had to take out a loan to pay for it. They were £ 350 but I think they've now gone up in price to over £ 400. Luckily, I found one on eBay for just over £ 200. For a while it didn't seem to work. I think my pain was so severe that the machine couldn't cope. So I'm seeing a Chiropractor at the moment, who has freed some of the vertebrae in my neck (where he said the pain is originating from), and now the machine is working well on me. It is a bit like a TENS machine, so the tingly feeling masks the pain of the spasm. But the difference is that it sends messages to the brain, to help the nerves to settle, because the brain has got so used to the pain, that it shoots out messages all the time telling the nerves to cause pain.
It sounds wacky but it works! Maybe not a cure but definitely good pain management.
You can Google BIO WAVE GO, and bring up all the info of the UK supplier etc. But do look on eBay as well.
I hope this has been helpful to you. Don't hesitate to message me if you want further information. Regards, Jeane

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Thanks for that info. Fortunately, I went to a pain management doctor about two months ago and he gave me a Botox shot. My muscle spasm went away and has stayed away. I say a miracle cure!! Susan

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