Why was I never told about spinal health when I was younger?

Posted by beigletony @beigletony, Aug 25 7:27am

Hi Guys!

I'm 70 years old. And last year I had MRI's on cervical, thorasic and lumbar regions, as part of an overall sweep. Now my neurologist told me (in passing) that I could eventually be a quadriplegic.

Back up, please. I'm 70 years old, 69 then. Are you going to tell me that if I live long enough (which I have), and have done the normal activity I have done (again, yes). That what I would deem as "fair wear and tear", that I could end up in a wheelchair because of what the MRIs show? Someone please explain this to me like I'm a 3 year old.

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I too am 70 yrs young. I never knew I had severe scoliosis until I turned 28. While working in restaurants, I did alot of lifting and twisting. Mopping floors, cooking, waiting on tables etc. made me start to have some back issues. When I finally went to a doctor ( ortho surgeon) I was informed I needed spine surgery which meant rods throughout my spine. Thankfully I said no at the time. I continued to be active- skiing, hiking, biking, etc. I have had MRI's through the years to follow my deterioration. (I even worked at an MRI facility) I currently walk my dogs 3-4 miles every morning, no skiing , but continue to garden, and hike. Pain hits me sometimes on my left flank and hips, and it seems to get worse with time. I could not touch my toes since I was about 50 but I did create a shower in my house that will accommodate a wheelchair when I need it. I do not take any pain meds but rather try to stretch my body when the pain hits. I can be walking and will need to squat down to relieve some pressure. Do not look forward to surgery, especially at this time in my life but it may be a reality soon. Also have been to PT so many times I have stopped counting. Never seemed to help.
Even dry needling. Currently I get most relief from massage once a month - no insurance does not cover this or I might go more often. I too wonder what is the right thing to do. I have also been to different doctors through the years. Even had one ask me why I was there. Never went back to him but with such different doctor opinions I have to rely on my ability to know myself and figure out when is the right time for surgery, if ever. There is "no" one answer.

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@beigletony

Hi Lori...
First, thank you for responding. I can give you the impressionss of each MRI...
Lumbar- IMPRESSION:
Old superior endplate compression fracture and Schmorl's node at the L1
vertebral body.
Multilevel disc disease, central canal stenosis, and neural foraminal stenosis.
Thorasic - IMPRESSION: At the T10-11 level there is mild disc bulge and moderate left
facet arthrosis with
hypertrophy. The facet hypertrophy results in abutment of the dorsal aspect
of the cord.
Cervical - IMPRESSION:
Degenerative changes and neural foraminal stenosis at multiple levels. Mild
central canal stenosis at
the C5-6 level.
Now I can understand fair wear and tear, but with no urgency until I hit a certain age? Shouldn't someone have told me like 20 years ago about spinal health? Does that sound silly?

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Not silly. I’ve been having epidurals in my spine, sometimes yearly, sometimes every 3 or 5 years, since my 40s. On MRI things kept getting worse (stenosis, spondylothesis, etc.) was anything more then epidurals suggested? Besides, PT, of course, which I did/do. When I asked earlier this year I was told no, now that the pain is in my legs it’s too late for that. Talk about having to advocate for oneself, but how could I advocate when I didn’t know the options. I pretty much accept this is the way it is, but it is frustrating and disappointing that a doc who I thought was caring for me never offered options, nor did I know to ask for them. My advancing scoliosis seen on MRI has never, ever been discussed with me. Guess my doc isn’t as good as I thought

Anyhow, as posted before, my surgery is put off while increasing bone density. So I am going to see a UCSF physician, and possibly a neurosurgeon, since I’m not sure who is best to pursue surgery with, for second and third opinions. I continue to do my weight lifting, biking, and whatever activity I can with the pain my my lower let from the now severe spinal stenosis.

Thanks for letting me vent. It is very frustrating.

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@willow5

Not silly. I’ve been having epidurals in my spine, sometimes yearly, sometimes every 3 or 5 years, since my 40s. On MRI things kept getting worse (stenosis, spondylothesis, etc.) was anything more then epidurals suggested? Besides, PT, of course, which I did/do. When I asked earlier this year I was told no, now that the pain is in my legs it’s too late for that. Talk about having to advocate for oneself, but how could I advocate when I didn’t know the options. I pretty much accept this is the way it is, but it is frustrating and disappointing that a doc who I thought was caring for me never offered options, nor did I know to ask for them. My advancing scoliosis seen on MRI has never, ever been discussed with me. Guess my doc isn’t as good as I thought

Anyhow, as posted before, my surgery is put off while increasing bone density. So I am going to see a UCSF physician, and possibly a neurosurgeon, since I’m not sure who is best to pursue surgery with, for second and third opinions. I continue to do my weight lifting, biking, and whatever activity I can with the pain my my lower let from the now severe spinal stenosis.

Thanks for letting me vent. It is very frustrating.

Jump to this post

Oh, I forgot to add, I’m 72 and very active. I’d still be running except for the leg pain.

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