1. < Gynecologic Cancers

Endometrial Adenocarcinoma: Concerned I will feel sick with treatment

Posted by RefluxGoAway @njp515, Dec 5 1:26pm

Endometrial Adenocarcinoma, FIGO Grade 1, but no bleeding or pain

Does anyone else have this situation where the cancer was found almost by accident, as we were looking for the source of urinary double-voiding, and I had absolutely no gynecological symptoms whatsoever. An Ultrasound picked up the 15mm thickness of my uterine lining, and then colposcopy, D&C, and biopsies followed. It was a total shock when I was told I have endometrial cancer, because I am 70 yo and NEVER bled after menopause at 54yo.
I have Barrett's Esophagus, but it has been controlled for more than 15 years. I had fibroid embolization in 2006 with no complications. My August colonoscopy is clear. Blood tests are all normal. Mammo is clear. Urodynamic testing showed no abnormalities. My biggest medical problem is osteoarthritis in my feet!
My meeting with the oncologist is next week, when I am sure we will decide what type of hysterectomy I need to have.
I'm just concerned that I will start to feel sick after treatment starts, because I've been fine up to this point.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Mentor
Helen, Volunteer Mentor | @naturegirl5 | 8 hours ago
In reply to @njp515 "Well, I had my first meeting with the oncologist last week which was both a consultation..." + (show)
@njp515

Well, I had my first meeting with the oncologist last week which was both a consultation and an exam. She then recommended a total hysterectomy done robotically, with one caveat. Because I have a giant hiatal hernia, she needs to see a CT Scan of the abdomen, so that was ordered and done today. At the same time, she scheduled the hysterectomy for Dec 30th. She seemed optimistic about the cancer being contained in the uterus lining, but could not be certain until after the hysterectomy. I will not have the analysis of the CT Scan for 3-5 days, but perhaps the oncologist will get it earlier than that and I'll know soon whether there are any changes in the course of action.
Meanwhile, I did get back the results of my genetic testing that the gynecologist ordered back in November. It was good news, I think, in that it summarizes as "Your genetic result was NEGATIVE"; This means that no clinically significant mutations were found in any of the genes analyzed as part of your testing. -- Frankly, this was a pleasant surprise, since there is deep history of cancers - breast, pancreatic, colon -- in my family.
So, now we wait and wait some more. There always seems to be one more hurdle to get over!

Jump to this post

@njp515 Thank you for coming back and sharing what happened at your oncology appointment last week. It's good that you won't have to wait long for the hysterectomy as December 30 is so close in time. I'm hoping that the CT results for the hiatal hernia are informative for the oncologist and do not change your treatment plans.

Good news, too, on the results of the genetic testing. And now you wait for the CT results. Will you please let me know the results of the CT?

REPLY
View MoreView Less
Please sign in or register to post a reply.