It's been awhile and I've been reading your replies and thank you for them. Otolaryngology had nothing much to say. Inner ears look OK. Unfortunately the loud pulsating tinnitus in my left ear wasn't present the day of my appointment.
Endocrinology also not much help. Doctor was very engaged and did a great job answering questions I had. My thyroid levels are normal, and he saw no endocrinological reasons for the flushing in my hands. Still did some tests: creatinine levels within normal range, tryptase, calcitonin, VIP level OK. PCP had me tested for some potential autoimmune disorders (and I know these tests aren't conclusive). SSA AB and SSB AB negative, rheumatoid factor normal, no ANA. Eosinophils still high % wise but within the normal range countwise. He suggested a dermatology consult and mentioned erythromelagia as a potential starting point. That doesn't seem to fit, as there's been little pain with the flushing, and it's not affecting my feet.
Had a long appointment with my PCP. I live alone, have significant anxiety and depression, and have no family and just a few acquaintances. So this is all quite scary. My PCP said there's not much else that can be done right now because I'm not displaying traits of any disease in particular. So, in other words, whatever is going on will just have to progress. I feel completely powerless. In terms of support, I have no idea what type of groups to look for, because I'm so confused as to what's going on- is it autoimmune, is it medication, a combination of things made worse by anxiety? Environmental? Ugh.
I have encountered something similar. I have certain diagnosed (lab, scan, biopsy confirmed) conditions to contend with, but also some that are a mystery. They could be anxiety produced. We can’t be sure. I have accepted that and openly discuss it with my doctors. Mine is health anxiety and it is challenging. I treat it with talk therapy, which really helps a lot! I have a great therapist. That, plus my daily workouts and nutritious diet has helped me a great deal. As my health improves, I hope the anxiety will too.