Is it just me, or do others suffer with no help too?

Posted by blondin925 @blondin925, Dec 6 12:22am

I have completed 5yrs of exemestane tx and have been in pain everyday from it for almost the whole time. Why are Oncologist denying that I am in pain from my treatment, and denying that it can cause very severe neuropathy pain for a small number of people who had the therapy. Is there anyone else out there living with this severe pain like me? I want to cut my legs off daily. Please share your pain. Maybe a doctor somewhere out there might give a crap for once and step out of denial. This is not a figment of my imagination, and it certainly isn't arthritis. I hope all the Oncologist that deny this is happening to patients end up with having to go through this treatment themselves some day and I hope their pain is 10x's worse than my pain scale of 10 that I am living with daily. Oh wait... "it's a figment of my imagination." Never mind.... Idiots!!!!

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@lisay1

It's a scary decision. I have Rheumatoid Arthritis which is very painful. I could take an injectable which I did for years. Now I'm worried about reoccuring cancer and do nothing to help with the Rheumatoid Arthritis. My surgeon said it's about the quality of life decision. I'm not trying to fight the RA but not so sure .......... I want to fight cancer again

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Hi
That's tough for sure. Ra is brutal. You can't take your RA meds if you do AI ? I am confused

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@sue417

Hi
That's tough for sure. Ra is brutal. You can't take your RA meds if you do AI ? I am confused

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Sorry for the confusion. I can take the RA medicine (Humira) but I'm afraid because it increases your risk of cancer. I had breast cancer that had traveled into my lymph nodes. I've been cancer free for three years but I'm worried about resuming the biologic medication.

Thank you for your interest. Best wishes.🦋

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