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@windyshores

@jheieck you describe the Prolia catch-22 (Prolia trap?) so well and it may help others. So sorry you are in this position. This is what my doctors are afraid of. But there are instances when Prolia is also the only option. This is all so difficult.

I just want to add something here about posting our experiences, research, and avoiding advising (like doctors!). Many of us (including @susanjane77) seek more than one opinion, For cancer I got 4 opinions! Then we come on this forum or talk to McCormick or read something and we end up with like 10 opinions. Any post on here is an opinion and we try to make it clear that it is not advice.

The field of osteoporosis needs more research. Too many of us are in one "trap" or another. Noone has told me what I will do after Tymlos, Evenity and Reclast. Some of us have a lot of years left.

Now that Evenity is on the market, since only 2019, things are even more complicated since there is little knowledge about whether you can do Tymlos or Forteo afterward, or whether it helps with Prolia rebound, or whether Reclast can be substituted for the last half, or whether we can eventually do short bursts of Evenity between other drugs, etc. etc. Researchers didn't even know that it was only anabolic for a short time. (They also didn't know that anti-resorptives could cause ONJ or femur fracture, or that Prolia could cause rebound.)

I am grateful for my doctor who has shown flexibility given my complex health situation. But doctors are bound by "evidence based medicine" meaning studies. And we are lacking studies!

I apologize for being persistent in suggesting questions for someone's doctor or suggesting another opinion from time to time. It is not helpful to express distrust of doctors. I believe there is a good fit for each of us. Many on this forum do research and then have well-informed discussions with their doctors, which can result in going a little outside the bounds of evidence or trying something new.

I am grateful for the ideas that others have brought to this forum which have helped me a lot. I think we all have the intention to be helpful and again I am sorry @susanjane77 if it came off as being too pushy.

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Replies to "@jheieck you describe the Prolia catch-22 (Prolia trap?) so well and it may help others. So..."

No one is misled into thinking that opinions, citations or individual experiences constitute proof of what their own experience will be. Because of your broad experience with ostoeporosis medications your contributions are excessive in value. It helps that you have interactive providers and that you yield their views here on Connect.
It appears to me that the distraction here is a misunderstanding of your intent caused, not by pressure you exert, but objection to the view you are expressing.
Osteoporosis is stressful often we are uncomfortable, on medication, in pain. It isn't surprising that misunderstandings happen; osteoporosis is stressful, can be painful, uncomfortable and many of us are on medications that alter our normally sweet dispositions.
I hope we all continue to have intense, divergent discussion of this treacherous disease.