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Getting through the pain days

Prostate Cancer | Last Active: 10 hours ago | Replies (20)

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@scottbeammeup

Not sure how it is in Canada, but in the U.S. doctors have started to under treat pain as a result of opiate abuse and the FDA watching them like hawks. Not saying pain meds are the answer but when pain is really bad they do help.

Do you have access to a hot tub, hot spring or anything like that? I find that heat is also really helpful for hip and back pain.

I see this post is a couple weeks old so I hope you are at least feeling a little bit better by now!

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Replies to "Not sure how it is in Canada, but in the U.S. doctors have started to under..."

Yes, thanks, finally I'm improving.

Hot baths are great, but the last time I took one I fainted when I started getting up and hit my head on the side of the tub. I woke up to my frightened spouse trying to revive me after she heard the thud and rushed in. My body doesn't regulate temperature properly since the spinal compression, and I guess I was a bit like a boiled frog. I'm going to try a bath again soon, but will stay sitting for a while after the water drains until I'm certain I don't feel light-headed.

I did not respond well to opioids in hospital recovering from surgery (bizarre, vivid dreams every time I closed my eyes), so I've consistently declined them when offered — that's on me rather than the system. CBDs did nothing for me, but Pregabalin (Lyrica) helped a lot with the nerve pain from my spinal injury. Unfortunately, it was also slowing the return of sensation below my ribs, so I finally titrated off it in 2023.

Most of the time the pain is mild and I'm coping fine, but every once in a while I have a rough couple of pain weeks, like the ones I just came through. The world looks much sunnier today.